Advocacy

New Policy Impacts: Advocacy in 2026

The National Scleroderma Foundation is gearing up for a busy year for our community’s legislative advocates. There are several federal health...

December 3, 2025Brian Perkins

The Community Engagement Word of the Year: Advocacy

A look back at a year of growth with Vice President of Community Engagement Ashley Pruett The National Scleroderma Foundation spent...

November 5, 2025Jesse Saunders

Foundation Joins Letter to Congress on Price Setting Policies

The Foundation is a proud member of The Ensuring Access through Collaborative Health (EACH) and Patient Inclusion Council (PIC), otherwise known...

October 31, 2025Brian Perkins

Advocates Unite for Virtual Hill Days 2025

This week, advocates from across the country came together for the 2025 Virtual Hill Days, a pivitol event where members of...

October 17, 2025Jesse Saunders

Make Your Voice Heard – Register for Virtual Hill Days 

Help demonstrate the strength of our community and speak up for policies that will improve the lives of people living with...

September 11, 2025Brian Perkins