Advocates from the National Scleroderma Foundation traveled to Washington, D.C. this past weekend to participate in Hill Day 2026 hosted by...
The National Scleroderma Foundation brought together stakeholders from the scleroderma community this weekend in Bethesda, including people living with scleroderma, researchers, clinicians, industry...
Scleroderma advocates from across the country spent Wednesday and Thursday speaking with legislative offices about the critical legislative priorities of the...
The National Scleroderma Foundation and our network for patient advocates are preparing for our next Virtual Hill Days meetings. Scleroderma advocates...
Q: Do you have any advice regarding how people can/should go about getting a proclamation from their local areas for Scleroderma...
The National Scleroderma Foundation is delighted to be participating in the Rare Disease Week and Rare Disease Day activities organized by...
The EACH/PIC Coalition has released an updated, patient-led analysis that sheds light on how people across the U.S. actually experience prescription...
We’re proud to share that we have joined the Champions for Change – Paid Time Off (PTO) Initiative, a national effort...
The National Scleroderma Foundation is very excited to share that one of the key pieces of legislation we have been supporting this year...
