The Boardman/Youngstown Support Group holds hybrid meetings on the first Monday of the month. The meetings are on Zoom and at Davidson's Restaurant on Canfield Rd. in Canfield. To register […]
28 events found.
National Scleroderma Foundation Events
Events
Calendar of Events
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The Pulmonary Arterial Hypertension Support Group meets on the first Tuesday of the month at 3:00 p.m. ET. Please click here to register in advance. A meeting link will be […] 
The new Teen Support Group meets at 7:30 p.m. ET on the first Tuesday of the month. To participate, please complete this interest form. Elle Hurley, manager of support programs, […] |
3 events,
This support group is in-person. For more information, please email support@scleroderma.org 
To register & for more information, please email djames@scleroderma.org 
El Grupo de Apoyo Voces Boricuas Unidas de la Fundación Nacional de Esclerodermia te invita a participar en nuestra próxima reunión virtual. Evaluación y Aprendizajes del Encuentro Presencial: Scleroderma Insights En esta sesión conversaremos sobre: • La revisión del encuentro presencial realizado el 24 de enero en Puerto Rico • Retroalimentación de los participantes • […] |
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Please click here to register in advance. Please email tristatechapter@scleroderma.org for more information. |
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To register & for more information, please email rmchapter@scleroderma.org 
To register & for more information, please email floridaprchapter@scleroderma.org |
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Join our parent support group and connect with other parents who understand the challenges of scleroderma. Click here to register in advance. A meeting link will be shared after registration. For more information, please email support@scleroderma.org. |
2 events,
To register & for more information, please email NEchapter@scleroderma.org 
Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group will help navigate these questions and support newly diagnosed individuals. Click here to register in advance. A meeting […] |
3 events,
This group will meet virtually on the 2nd Thursday of each month. CLICK HERE TO REGISTER 
Drop-In meeting - drop in to say hi or stay to give or get support. Use this link to register: https://us02web.zoom.us/meeting/register/gjCo3CkLTWOxnuN5DuzFzQ 
To register & for more information, please email uglchapter@scleroderma.org |
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To register & for more information, please email pcollins@scleroderma.org 
The Denver Mile High Support Group is hybrid and meets on the second Saturday of every month. Starting in January and through April, the meetings will only be held virtually. To register & for more information, please email rmchapter@scleroderma.org 
To register & for more information, please email cfidalgo@scleroderma.org 
For more information, please email floridaprchapter@scleroderma.org Use this link to register in advance: https://us02web.zoom.us/meeting/register/qWft8jCtQk6HUjt_qnfyrQ#/ 
For more information, please email floridaprchapter@scleroderma.org Use this link to register in advance: Meeting Registration - Zoom This support group only meets during the odd months of the year. 
To register & for more information, please email sechapter@scleroderma.org
Virtual Event
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Virtual Event
En el Mes de las Enfermedades Raras, el Grupo Conexión en Español de la Fundación Nacional de Esclerodermia, en colaboración con la Fundación Ecuatoriana de Esclerodermia, la Asociación Española de Esclerodermia y Mi Vida con Esclerodermia (México), le invitamos a nuestro encuentro virtual. 💙 Esclerodermia: Acompañamiento Integral para una Vida con Esperanza 📅 14 de […] 
We are excited to announce the launch of a new scleroderma support group serving the Greater Nashville, Tennessee area. This meeting is for brief introductions and discussion of goals for this group, format (Zoom, in person, hybrid), and frequency (ex: monthly) going forward in 2026. Meeting is open to people with scleroderma as well as […] |
1 event,
To register & for more information, please email sechapter@scleroderma.org |
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3 events,
If you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving. Our monthly bereavement support group will be on the third Tuesday of every month from 7:00-8:30 p.m. ET. Click here to register in advance for this meeting. After registering, you will receive a […] 
The Virtual Localized Scleroderma Support Group will meet at 7 p.m., Eastern, 3rd Tuesday of each month. Click here to register in advance. A meeting link will be shared after registration. If you're interested in learning more or joining, please email localizedSG@scleroderma.org. 
For more information, please email support@scleroderma.org |
2 events,
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To register & for more information, please email westmetrosupport_ugl@scleroderma.org |
1 event,
For more information, please email dcharlton@scleroderma.org Use this link to register in advance: Meeting Registration - Zoom |
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To register & for more information, please email support@scleroderma.org 
To register & for more information, please email djames@scleroderma.org 
To register & for more information, please email rmchapter@scleroderma.org 
To register & for more information, please email NEchapter@scleroderma.org This group also meets virtually at 1:30 pm ET. |
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To register & for more information, please email rmchapter@scleroderma.org |
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Rare Disease Week will take place from February 24 to February 26, 2026, in Washington, DC, focusing on advocacy and awareness for rare diseases! 
This support group meets at the Josephine-Louise Public Library in Walden, NY and offers a virtual option. The library is inside of Walden's Municipal Building, and the community room is on the second floor. You need to enter the main door of the Municipal Building instead of the library's entrance to access the elevator. Contact […] |
3 events,
If you are interested in learning more, please email, LGBTQ@scleroderma.org, with questions. Click here to register in advance. A link to the meeting will be made available after registration. 
Scleroderma diagnoses are less common amongst men. In fact, only 20% of the patient population is made up of males. We’ve designed a support group especially for males with scleroderma. […] |
4 events,
Please click here to register in advance. To register & for more information, please email uglchapter@scleroderma.org
Open Discussion Support Group Use this link to register: https://us02web.zoom.us/meeting/register/U0JR1hhtTWOffQRCFI-5OA 
The Caregivers Support Group meets on the 4th Thursday of the month at 7:00 p.m. ET. Click here to register. A link to the Zoom meeting will be sent after you register. |
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Rare Disease Day is February 28, 2026. For more information, please visit Rare Disease Day 2026 
To register & for more information, please email rmchapter@scleroderma.org This group meets on the fourth Saturday of even months. 
To register & for more information, please email NEchapter@scleroderma.org
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Registration for Nationwide Children's Hospital Rare Disease Day is required to attend the Scleroderma Education Meet & Greet. Scan the QR codes on the flyer to register for BOTH or click links below: Rare Disease Day - https://nationwidechildrens.cloud-cme.com/course/courseoverview?P=0&EID=47600&fbclid=IwY2xjawPvLftleHRuA2FlbQIxMABicmlkETFSZVZWU0t3azRoZzFadkpBc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHod8P98SFTC9TxcHEjVr8KCN8Z186wIWvKNKvRXk8PUSYDBH0f9aY19PefBt_aem_9obydX_M-S_dtORi_M-_5g Scleroderma Meet & Greet - https://wkf.ms/3M33lPR
Virtual Event
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