The Southeast Florida Chapter helps those affected by scleroderma find their best path and connects with a national community
Pompano Beach FL – January 11, 2022 – The Scleroderma Foundation, a national nonprofit that advances medical research, promotes disease awareness and provides support and education to people with scleroderma and their families and support networks, today announced that it will now be known as the National Scleroderma Foundation to help reach and educate a larger audience and connect more people in the scleroderma community with the resources they need. The National Scleroderma Foundation also relaunched its website and unveiled a new logo to accompany the name change. The National Scleroderma Foundation helps connect the community of 300,000 Americans living with scleroderma and funds innovative research to discover the cause, understand the mechanism, and overcome the disease forever.
The Foundation’s Southeast Florida Chapter serves Palm Beach, Broward, Miami Dade, and Monroe counties. With this rebrand, the National Scleroderma Foundation will connect those affected by scleroderma to the latest educational and clinical resources, as well as connect the community through events, support groups, treatments and specialists.
“The scope of our work is nationwide,” said Mary Wheatley, CEO of the National Scleroderma Foundation. “We need all hands on deck in the fight against this disease. That includes families and volunteers, support groups that inspire others by sharing their journeys, leading clinicians and researchers and many more who we want to connect to our scleroderma community. These connections will help increase support for those affected by scleroderma, drive greater awareness of the disease, and hopefully lead to finding a cure.”
“Our local Southeast Florida Chapter makes a difference in the lives of those living with and affected by scleroderma,” said Ferne Robin, Executive Director. “By becoming the National Scleroderma Foundation, we hope to broaden the scleroderma community so we can have a greater impact and help more people affected by scleroderma find their best path.” This year we are having our 18th Annual Stepping Out to Cure Scleroderma walk on February 26, 2022 at Tradewinds Park. For more information go to scleroderma.org/steppingoutsefl.
Scleroderma is a rare rheumatic disease that affects connective tissue and the vascular system producing excessive collagen that causes fibrosis in the skin (localized) or in internal organs (systemic sclerosis). The result can be disfigurement and disability, and for some it can be life-threatening. No one knows what causes the rare autoimmune disease and there is no cure. Scleroderma most often affects women ages 25-55, but also affects kids and teens in the form of pediatric scleroderma.
One of the most challenging things about scleroderma is that it shows up differently in each person making it more complicated to diagnose and treat since there is not one clear path. The National Scleroderma Foundation knows that no two journeys are the same, and that it’s essential that people affected by the disease find the resources that help them live better with scleroderma. No matter where an adult or a child is in their journey, or what kind of scleroderma they have, the National Scleroderma Foundation can help find their best path.
Scleroderma is a rare autoimmune disease that affects connective tissue and the vascular system producing excessive collagen that causes fibrosis in the skin (localized) or in internal organs (systemic sclerosis). More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers, causing pain, disability, and death. Thanks to the passion and dedication of volunteer leaders, scientists and supporters, great strides have been made. Yet despite these advancements, the challenges in scleroderma today are greater than ever, requiring committed resources to achieve ambitious goals and outcomes.
ABOUT THE NATIONAL SCLERODERMA FOUNDATION
The National Scleroderma Foundation is a 501(c)(3) charitable organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma. Supported by a network of thousands of individuals across the United States, the Foundation aims to help people living with scleroderma find their best path.