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More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
The National Scleroderma Foundation, a relentless force in finding a cure and improving the lives of people affected by…
The National Scleroderma Foundation today announced new leadership for its Board of Directors, naming Dr. Carol Feghali-Bostwick as Chair, alongside a newly appointed slate…
New Support Group Facilitator’s Unique Journey Provides Hope and Support to the Community At a younger age, Ava Nusblatt aspired to be…
Events
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National Scleroderma Conference
FeaturedThe 2026 National Scleroderma Patient Education Conference will be held July 17-19, 2026, in Baltimore, Maryland. Information about the conference hotel and conference registration can be found at scleroderma.org/conference. <!-- If […]
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St. Louis Support Group
Virtual EventThe St. Louis Scleroderma Support Group serves the Heartland Chapter and meets virtually on the 3rd Saturday of odd-numbered months. For more information, please email support@scleroderma.org.
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South Chapter-Geaux Teal
Virtual EventTo register & for more information, please email support@scleroderma.org
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Connecticut Scleroderma Support Group
Virtual EventFor more information, please email tristatechapter@scleroderma.org Use this link to register in advance: Meeting Registration - Zoom This group meets on the third Saturday every three months. Specific times are TBA.
