National Scleroderma Foundation

Our Mission The National Scleroderma Foundation was founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma.
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Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters, in addition to more than 100 support groups.
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
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featured news Read the latest news and information from the Foundation.
September 7, 2022 Linda J.B. Baum, OD on Scientific Peer Review Panel for the Department of Defense Courage and Adapt

The Congressionally Directed Medical Research Programs’ (CDMRP), Peer Reviewed Medical Research Program (PRMRP) consumer advocate recently participated in the…
July 1, 2022 Trusted Board Member Elected to Lead National Scleroderma Foundation

Kevin Boyanowski Elected as Chair of the National Scleroderma Foundation DANVERS – The National Scleroderma Foundation has elected Kevin…
June 29, 2022 June 29 is World Scleroderma Day

DANVERS, MA – Each year on June 29 the National Scleroderma Foundation observes World Scleroderma Day as the punctuation…
June 1, 2022 Know Scleroderma: National Scleroderma Foundation 2022 Awareness Campaign

“Know Scleroderma” is the National Scleroderma Foundation’s theme for June 2022 Scleroderma Awareness Month. Scleroderma is a rare rheumatic…
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Sign Up for a Foundation Event Upcoming Events
September 28, 2022; 6 p.m. Eastern Teens and Parents Scleroderma Support Group
September 28, 2022; 7 p.m. Eastern The 20%: A Virtual Support Group for Males Living with Scleroderm
October 5, 2022; 7:30 p.m. Eastern Parents of Children with Scleroderma
October 15, 2022; 9 a.m. Central Heartland 10th Annual Sclero-What? Education Day
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation