Where to Start
More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Living with a rare disease like Diffuse Scleroderma can feel overwhelming, isolating, and extremely frightening- especially in the early…
The National Scleroderma Foundation is delighted to be participating in the Rare Disease Week and Rare Disease Day activities…
The National Scleroderma Foundation is very excited to introduce Chrissy Geimann to the team. Chrissy joined the Foundation in…
Events
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Rare Disease Week – Washington, DC
Rare Disease Week will take place from February 24 to February 26, 2026, in Washington, DC, focusing on advocacy and awareness for rare diseases!
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LGBTQ+ Scleroderma Support Group
Zoom Meeting link available after registrationVirtual EventIf you are interested in learning more, please email, LGBTQ@scleroderma.org, with questions. Click here to register in advance. A link to the meeting will be made available after registration.
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The 20%: A Virtual Support Group for Males Living with Scleroderma
Zoom Meeting link available after registrationVirtual EventScleroderma diagnoses are less common amongst men. In fact, only 20% of the patient population is made up of males. We’ve designed a support group especially for males with scleroderma. […]
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Wisconsin Scleroderma Support Group
Virtual EventPlease click here to register in advance. To register & for more information, please email uglchapter@scleroderma.org
