National Scleroderma Foundation

2023 National Scleroderma Conference Join us July 14-16, in Orlando, Florida, for this year’s National Scleroderma Conference!
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Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters, in addition to more than 100 support groups.
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
Donate Now
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featured news Read the latest news and information from the Foundation.
March 24, 2023 Support Group Leaders Support One Another

CENTRAL TO THE MISSION OF THE NATIONAL SCLERODERMA FOUNDATION IS offering support and is the primary focus of this…
March 21, 2023 Return to in-person meetings and events

On March 21, the National Scleroderma Foundation announces the return to in-person meetings and events. The Board of Directors…
March 16, 2023 CEO Update: March 2023

Registration OPEN for National Scleroderma Conference Join us at July 14, 15 and 16, 2023 for the National Scleroderma Conference…
March 10, 2023 Conference registration now open

Registration for the 2023 National Scleroderma Conference is now open. Join us July 14-16, at the Signia by Hilton…
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Sign Up for a Foundation Event Upcoming Events
April 5, 2023; 7:30 p.m. Eastern Parents of Children
April 15, 2023; 10 a.m. Mountain Caregiver Connection Support Group
April 26, 2023; 7 p.m. Eastern The 20%: A Virtual Support Group for Males Living with Scleroderma
Last Day to Become a Champion Member!
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation