National Scleroderma Foundation

Our Mission The National Scleroderma Foundation was founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma.
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Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters operating in 32 states and the District of Columbia, in addition to more than 150 support groups.
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
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featured news Read the latest news and information from the Foundation.
May 5, 2022 In Memoriam | Dr. Giuseppina Alessandra Farina

The scleroderma community is mourning the loss of Dr. Giuseppina Alessandra Farina, who passed away last week while in…
April 27, 2022 Virtual Brand Launch

On April 21, 2022, the Foundation held a virtual brand launch event. It was great opportunity to unveil a…
April 11, 2022 Ashley Barron Named Celebrity Ambassador by National Scleroderma Foundation

The National Scleroderma Foundation announced today that recording artist Ashley Barron has been named their official Celebrity Ambassador.  A…
April 11, 2022 COVID-19 Vaccination, Prevention, and Treatment for Patients with Scleroderma

UPDATED April 11, 2022 By Jiha Lee, MD, MHS, and Dinesh Khanna, MD, MSc, Department of Internal Medicine, Division…
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Sign Up for a Foundation Event Upcoming Events
May 21, 2022; 12 p.m. – 1 p.m. Eastern The Scleroderma Body: Head to Toe – Inside & Out with Dr. Maureen Mayes
June 3, 2022; 7 p.m. Eastern SYNC Meeting: Patient Empowerment
June 16, 2022; 4 p.m. Eastern Stakeholder Update
June 29, 2022 World Scleroderma Day
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation

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