Where to Start
More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
More than 1,000 clinicians and researchers joined together for the 9th Systemic Sclerosis World Congress. Organized by the World Scleroderma Foundation, the event runs…
The National Scleroderma Foundation and our network for patient advocates are preparing for our next Virtual Hill Days meetings….
The National Scleroderma Foundation is excited to introduce Dionna Bartos as our new Director of Education. Dionna first joined…
Events
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LGBTQ+ Scleroderma Support Group
Zoom Meeting link available after registrationVirtual EventIf you are interested in learning more, please email, LGBTQ@scleroderma.org, with questions. Click here to register in advance. A link to the meeting will be made available after registration.
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The 20%: A Virtual Support Group for Males Living with Scleroderma
Zoom Meeting link available after registrationVirtual EventScleroderma diagnoses are less common amongst men. In fact, only 20% of the patient population is made up of males. We’ve designed a support group especially for males with scleroderma. […]
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Wisconsin Scleroderma Support Group
Virtual EventPlease click here to register in advance. To register & for more information, please email uglchapter@scleroderma.org
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Caregivers Support Group
Zoom Meeting link available after registrationVirtual EventThe Caregivers Support Group meets on the 4th Thursday of the month at 7:00 p.m. ET. Click here to register. A link to the Zoom meeting will be sent after […]
