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More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
It’s that time of year when we get excited to gather for the holidays, but also face cold and…
By Mary Wheatley, CEO The National Scleroderma Foundation team just returned from ACR Convergence (ACR stands for American College…
“When one person gets sick, the entire family gets sick.” Rachel Meyn Ugarte is no stranger to the nonprofit world….
Establishing a circle of support for men “Men in my generation aren’t supposed to cry.” –Michael Bessert Relentless. Unabating….
The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.