Where to Start
More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
The National Scleroderma Foundation brought together stakeholders from the scleroderma community this weekend in Bethesda, including people living with scleroderma, researchers,…
If you’re joining us in Baltimore this July, take some time to explore everything Charm City has to offer….
That National Scleroderma Foundation is pleased to welcome Robert Riggs back to the Foundation as the new Vice President…
Events
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Coalition of Skin Diseases Hill Day
The Coalition of Skin Diseases is hosting its annual Hill Day visit in Washington, D.C. in May. The National Scleroderma Foundation is a proud member of the Coalition of Skin […]
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BIPOC Support Group
Virtual EventThe facilitators of BIPOC (Black, Indigenous, and People of Color) Virtual Support Group invite you to join their upcoming Zoom support group meeting. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/3q7RtYIIS5Oq6KbUSu6cIA After registering, you will receive a confirmation email containing information about joining the meeting.
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ILD in Systemic Sclerosis: Understanding Progression and Treatment Options
Virtual EventPlease join us for The Lungs in Scleroderma (ILD) webinar! Francesco Boin, MD, professor medicine, director of the division of rheumatology and director of the Kao Multispecialty Scleroderma Program at Cedars-Sinai Medical Center, will lead the discussion. This webinar is sponsored by Boehringer Ingelheim. Please note there has been a schedule change for this event. […]
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Bereavement Support Group
ZoomVirtual EventIf you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving. Our monthly bereavement support group will be on the third Tuesday of every month from 7:00-8:30 p.m. ET. Click here to register in advance for this meeting. After registering, you will receive a […]
