National Scleroderma Foundation

2023 National Scleroderma Conference Join us July 14-16, in Orlando, Florida, for this year’s National Scleroderma Conference!
Register for conference 25th Anniversary: Many Journeys, One Mission
Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters, in addition to more than 100 support groups.
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
Donate Now
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featured news Read the latest news and information from the Foundation.
May 26, 2023 In Honor of Memorial Day

For anyone who has lost a loved one or friend in military service to our country, we stand by…
May 10, 2023 Foundation Leader Honored with National Award

Danvers, Massachusetts. May 9, 2023 The Board of Directors of the National Scleroderma Foundation is pleased to congratulate Carol…
May 8, 2023 COVID Guidance Update

The World Health Organization (WHO) announced Friday that it was ending its declaration of Covid-19 as a global health…
May 5, 2023 Continuing Medical Education (CME) Meeting

Scleroderma experts are providing important Continuing Medical Education (CME) at the Congress of Clinical Rheumatology in Destin, Florida today,…
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Sign Up for a Foundation Event Upcoming Events
May 20, 2023; 10 a.m. Mountain Caregiver Connection Support Group
May 21, 2023; 4 p.m. Eastern BIPOC Support Group
May 22, 2023; 7 p.m. Eastern Tri-State Support Group: Medicare
May 24, 2023; 6 p.m. Eastern Teens and Parents Scleroderma
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation