National Scleroderma Foundation

Our Mission The National Scleroderma Foundation was founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma.
Donate Now!
Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters, in addition to more than 100 support groups.
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
Donate Now
This is the default image
featured news Read the latest news and information from the Foundation.
thanksgiving table
November 16, 2022 Stay healthy for the holidays

It’s that time of year when we get excited to gather for the holidays, but also face cold and…
November 15, 2022 Scleroderma Specialists Convene at ACR Convergence

By Mary Wheatley, CEO The National Scleroderma Foundation team just returned from ACR Convergence (ACR stands for American College…
November 3, 2022 Creating Space for Our Caregivers

“When one person gets sick, the entire family gets sick.”  Rachel Meyn Ugarte is no stranger to the nonprofit world….
October 11, 2022 Celebrating One Year of The 20% 

Establishing a circle of support for men “Men in my generation aren’t supposed to cry.” –Michael Bessert Relentless. Unabating….
This is the default image
Sign Up for a Foundation Event Upcoming Events
November 29, 2022 Giving Tuesday
December 3, 2022; 10 a.m. Eastern Ohio Education Day
December 7, 2022; 7:30 p.m. Eastern Parents of Children with Scleroderma
December 16, 2022; 7 p.m. Eastern SYNC (Young Adults Needing Connection) Support Group
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation