Where to Start
More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
The National Scleroderma Foundation is very excited to introduce Daniel Martinez to the team. Daniel joined the Foundation in…
Living with a rare disease like Diffuse Scleroderma can feel overwhelming, isolating, and extremely frightening- especially in the early…
The National Scleroderma Foundation is delighted to be participating in the Rare Disease Week and Rare Disease Day activities…
Events
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Boardman/Youngstown Support Group
Hybrid EventThe Boardman/Youngstown Support Group holds hybrid meetings on the first Monday of the month. The meetings are on Zoom and at Davidson's Restaurant on Canfield Rd. in Canfield. To register & for more information, please email lglchapter@scleroderma.org.
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Pulmonary Arterial Hypertension Support Group
Zoom Meeting link available after registrationVirtual EventThe Pulmonary Arterial Hypertension Support Group meets on the first Tuesday of the month at 3:00 p.m. ET. Please click here to register in advance. A meeting link will be shared after registration. For more information, please email PAH@scleroderma.org.
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Teen Scleroderma Support Group
Zoom Meeting link available after registrationVirtual EventThe new Teen Support Group meets at 7:30 p.m. ET on the first Tuesday of the month. To participate, please complete this interest form. Elle Hurley, manager of support programs, will contact you with more information. Email teenSG@scleroderma.org for more information.
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