National Scleroderma Foundation

Our Mission The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Our vision is to be a relentless force in finding a cure and improving the lives of people affected by scleroderma.
Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters, in addition to more than 100 support groups.
HOPE Line The National Scleroderma Foundation’s HOPE Line (800-722.HOPE/4673) is a free service offering support for people living with scleroderma, caregivers, families and the public. Anyone can contact the HOPE Line during the hours of (8:30am-5pm ET) to speak with a team member. Callers can leave a voicemail after hours. All inquiries will receive a response within 2 business days. You can also email us at support@scleroderma.org
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
Donate Now
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Featured News Read the latest news and information from the Foundation.
U.S. Food and Drug Administration graphic reading “A New Framework for Rare Disease Review” and “October 2026.”
November 13, 2026 FDA Launches Rare Disease Framework Initiative

On October 14, the U.S. Food and Drug Administration (FDA) launched its Rare Disease Framework Initiative to rethink how…
November 12, 2026 As Science Moves Forward, Hope Grows Stronger: Scleroderma Highlights from ACR Convergence 2026 

The National Scleroderma Foundation team is heading home from an inspiring week of science, community and connection at ACR…
November 6, 2026 Scleroderma Research Briefing: Shining a Light on Hope & Progress

By: Mary Whealey, IOM, CAE On Friday morning, the National Scleroderma Foundation hosted a Scleroderma Research Briefing at ACR…
October 30, 2026 Meet Ari: Foundation Launches Partnership with Citizen Health

Most people with autoimmune conditions already keep their own records: a spreadsheet of results, a running list of medicines…
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Join Us for a Foundation Event Upcoming Events

Events

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Today

  • Stepping Out to Cure Scleroderma – Houston

    Join us on November 14 for Stepping Out to Cure Scleroderma - Houston, honoring Jacob Giovanna. Register by October 23 to guarantee a t-shirt. Date: November 14, 2026 Registration Time: 9:00 […]

  • Connecticut Support Group

    Virtual Event

    The Connecticut Scleroderma Support Group will be meeting on Saturday, November 14th from 10:00am to 11:30am ET. To register, please follow this link: https://scleroderma.org/ConnecticutSG-Nov-14 Please email connecticutsg@sclerodermavolunteer.org with any questions.

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Join Us for a Foundation Event Upcoming Events
September 16, 2025, 7:00 p.m. ET Bereavement Support Group
September 16, 2025, 7:00 p.m. ET Morphea/Localized Scleroderma Support Group
September 17, 2025, 6:30 p.m. CT West Metro Support Group (MN)
September 18, 2025, 6:00 p.m. ET Central North Carolina SSc Support Group
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation