Where to Start
More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
For more than 20 years, Lisa dedicated her career to helping children learn and grow. A Tampa-area teacher, wife,…
The National Scleroderma Foundation is very excited to introduce Alison Fronning to the team. Alison joined the Foundation in…
The National Scleroderma Foundation is proud to announce the recipients of the 2026 Pre-Doctoral Fellowship awards. The Pre-Doctoral Summer Fellowship…
Events
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Orange County Support Group (Hybrid)
This support group meets at the Josephine-Louise Public Library in Walden, NY and offers a virtual option. The library is inside of Walden's Municipal Building, and the community room is on the second floor. You need to enter the main door of the Municipal Building instead of the library's entrance to access the elevator. Contact […]
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LGBTQ+ Scleroderma Support Group
ZoomVirtual EventIf you are interested in learning more, please email, LGBTQ@scleroderma.org, with questions. Click here to register in advance. A link to the meeting will be made available after registration.
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The 20%: A Virtual Support Group for Males Living with Scleroderma
ZoomVirtual EventScleroderma diagnoses are less common amongst men. In fact, only 20% of the patient population is made up of males. We’ve designed a support group especially for males with scleroderma. Please click here to register in advance. A link to the meeting will be sent to you after registration.
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Wisconsin Scleroderma Support Group
Virtual EventPlease click here to register in advance. To register & for more information, please email uglchapter@scleroderma.org
The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.
