National Scleroderma Foundation

Our Mission The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Our vision is to be a relentless force in finding a cure and improving the lives of people affected by scleroderma.
25th Anniversary: Many Journeys, One Mission
Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters, in addition to more than 100 support groups.
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
Donate Now
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featured news Read the latest news and information from the Foundation.
November 16, 2023 National Scleroderma Foundation Receives $25,000 Match for GivingTuesday

Danvers, Mass. – The National Scleroderma Foundation, the leading nonprofit funder of peer-reviewed research to discover the cause, understand…
September 18, 2023 National Scleroderma Foundation Earns 4-star Charity Navigator Rating for 7th Consecutive Year

Danvers, Mass. – The National Scleroderma Foundation, the leading nonprofit funder of peer-reviewed research to discover the cause, understand…
September 12, 2023 National Scleroderma Foundation Promotes Ashley Pruett to Vice President of Community Engagement

Danvers, Massachusetts – The National Scleroderma Foundation, the leading nonprofit organization providing support and education to people with scleroderma,…
August 18, 2023 National Scleroderma Foundation Announces Date, Location for 2024 Annual Conference 

Bellevue, Washington – The National Scleroderma Foundation, the leading nonprofit funder of peer-reviewed research to discover the cause, understand…
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Sign Up for a Foundation Event Upcoming Events
November 28, 2023 GivingTuesday 2023
December 13, 2023; 7 p.m. Eastern Newly Diagnosed Support Group
December 16, 2023; 10 a.m. Mountain Caregiver Connection Support Group
December 19, 2023; 8:30 p.m. Eastern Bereavement Support Group
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation