Where to Start
More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
In a recent interview, Kate Bogner shared her story with striking honesty and strength, offering a perspective shaped not…
Scleroderma advocates from across the country spent Wednesday and Thursday speaking with legislative offices about the critical legislative priorities…
The National Scleroderma Foundation’s Florida & Puerto Rico Chapter, in partnership with Mayo Clinic Jacksonville, will host Scleroderma Insights:…
Events
-
-
Minnesota Frost – Scleroderma Awareness Event
We are excited to host a Scleroderma Awareness Event at the April 19, 2026, Minnesota Frost Women’s Hockey Game. They are the reigning Walter Cup Champions! We will have our own private box (normally $70) and have a table on the concourse to give information on scleroderma to all the Frost fan base attending the […]
-
Atlanta Support Group
Virtual EventTo register & for more information, please email sechapter@scleroderma.org
-
Bereavement Support Group
Zoom Meeting link available after registrationVirtual EventIf you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving. Our monthly bereavement support group will be on the third Tuesday of every month from 7:00-8:30 p.m. ET. Click here to register in advance for this meeting. After registering, you will receive a […]
-
Morphea/Localized Scleroderma Support Group
Zoom Meeting link available after registrationVirtual EventThe Virtual Localized Scleroderma Support Group will meet at 7 p.m., Eastern, 3rd Tuesday of each month. Click here to register in advance. A meeting link will be shared after registration. If you're interested in learning more or joining, please email localizedSG@scleroderma.org.
