National Scleroderma Foundation

Our Mission The National Scleroderma Foundation was founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma.
25th anniversary Donate Now!
Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters, in addition to more than 100 support groups.
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
Donate Now
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featured news Read the latest news and information from the Foundation.
January 27, 2023 January Quarterly Stakeholder Update recording available

National Scleroderma Foundation CEO, Mary J. Wheatley, IOM, CAE, recently reviewed key mission metrics with Foundation stakeholders. Watch this…
January 20, 2023 Save the date for the 2023 National Scleroderma Conference

We’re excited to meet with you in-person or virtually for the 2023 National Scleroderma Conference! We’re busy working behind…
January 13, 2023 Offices closed for Martin Luther King Jr. Day

On Monday, Jan. 16, the National Scleroderma Foundation joins the rest of nation in honoring the life of Dr….
January 10, 2023 CEO Update

I hope you had a wonderful holiday season and are having a good start to 2023. We have lots…
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Sign Up for a Foundation Event Upcoming Events
February 1, 2023; 7:30 p.m. Eastern Parents of Children with Scleroderma Support Group
February 10, 2023; 7 p.m. Eastern SYNC – (Young Adults Needing Connection)
February 18, 2023; 10 a.m. Mountain Caregiver Connection Support Group
February 22, 2023; 6 p.m. Mountain Teens and Parents Scleroderma Support Group
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation