National Scleroderma Foundation

Our Mission The National Scleroderma Foundation was founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma.
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Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters operating in 32 states and the District of Columbia, in addition to more than 150 support groups.
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
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featured news Read the latest news and information from the Foundation.
January 10, 2022 National Scleroderma Foundation Broadens Reach with New Name

The Scleroderma Foundation evolves into the National Scleroderma Foundation to help those affected by scleroderma find their best path…
January 10, 2022 Scleroderma Community Deeply Saddened by Loss of Bob Saget

The sudden loss of Bob Saget on Sunday, January 9, 2022, is a terrible loss for his family and…
December 21, 2021 2021 Kids Get Scleroderma, Too!

A Virtual Conference for Parents & Guardians — The 2021 Kids Get Scleroderma, Too! conference (KGS2) took place as…
December 20, 2021 Save the Date for the 2022 National Scleroderma Conference

July 15, 16, 17 in Bellevue, Washington — The National Scleroderma Foundation announced a return to an in-person event…
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Sign Up for a Foundation Event Upcoming Events
January 12, 2022 Early Career Investigator Workshop
January 13, 2022 Strategic Plan Update with Our CEO
February 22, 2022; 1PM Eastern How to Dance in the Rain, virtual educational conference
February 26, 2022; 10:00 AM 2022 Stepping Out – Coconut Creek, FL
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation