National Scleroderma Foundation

Our Mission The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Our vision is to be a relentless force in finding a cure and improving the lives of people affected by scleroderma.
Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters, in addition to more than 100 support groups.
HOPE Line The National Scleroderma Foundation’s HOPE Line (800-722.HOPE/4673) is a free service offering support for people living with scleroderma, caregivers, families and the public. Anyone can contact the HOPE Line during the hours of (8:30am-5pm ET) to speak with a team member. Callers can leave a voicemail after hours. All inquiries will receive a response within 2 business days. You can also email us at support@scleroderma.org
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
Donate Now
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Featured News Read the latest news and information from the Foundation.
September 1, 2026 Two CAR-T Clinical Trials Paused: An Update

National Scleroderma Foundation leadership is aware of the pause in two CAR-T clinical development programs and is closely following…
August 16, 2026 Remembering Dr. Thomas A. Medsger Jr. 

The National Scleroderma Foundation joins the scleroderma community in mourning the passing of Dr. Thomas A. Medsger Jr., a…
August 5, 2026 A New Chapter: Lisa’s Journey with Scleroderma and Lung Transplantation

For more than 20 years, Lisa dedicated her career to helping children learn and grow. A Tampa-area teacher, wife,…
July 28, 2026 Getting to Know Alison

The National Scleroderma Foundation is very excited to introduce Alison Fronning to the team. Alison joined the Foundation in…
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Join Us for a Foundation Event Upcoming Events

Events

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Today

  • Stepping Out to Cure Scleroderma – Boston

    Franklin Zoo 1 Franklin Park Rd., Boston, MA, United States

    Join us for Stepping Out to Cure Scleroderma - Boston on Saturday, September 19. “The Boston Walk is deeply personal to me. I walk in loving memory of my mom, Marcia Delatizky, who was diagnosed with scleroderma in July 2000 and passed away in February 2024 after a brief illness. I miss her every single day. Participating […]

  • Houston Scleroderma Education Day

    Featured
    Denton and Ralph Cooley University Life Center 7440 Cambridge St., Houston, TX, United States

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Join Us for a Foundation Event Upcoming Events
September 16, 2025, 7:00 p.m. ET Bereavement Support Group
September 16, 2025, 7:00 p.m. ET Morphea/Localized Scleroderma Support Group
September 17, 2025, 6:30 p.m. CT West Metro Support Group (MN)
September 18, 2025, 6:00 p.m. ET Central North Carolina SSc Support Group
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation