National Scleroderma Foundation

Our Mission The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Our vision is to be a relentless force in finding a cure and improving the lives of people affected by scleroderma.
Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters, in addition to more than 100 support groups.
HOPE Line The National Scleroderma Foundation’s HOPE Line (800-722.HOPE/4673) is a free service offering support for people living with scleroderma, caregivers, families and the public. Anyone can contact the HOPE Line during the hours of (8:30am-5pm ET) to speak with a team member. Callers can leave a voicemail after hours. All inquiries will receive a response within 2 business days. You can also email us at support@scleroderma.org
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
Donate Now
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Featured News Read the latest news and information from the Foundation.
June 11, 2026 Shine a Light on Community

New Support Group Facilitator’s Unique Journey Provides Hope and Support to the Community  At a younger age, Ava Nusblatt aspired to be…
June 3, 2026 Stories of Hope: Scleroderma Awareness Month 2026

This year we are celebrating the beacons of hope in the scleroderma community. Every person living with scleroderma has…
May 29, 2026 Double Your Impact at Stepping Out to Cure Scleroderma Walks Across the Country

We’re excited to share that several of our upcoming walk events are offering special Matching Gift opportunities – giving you…
May 26, 2026 Foundation Launches New Children’s Book

With Scleroderma Awareness Month just a week away, the National Scleroderma Foundation is incredibly excited to share some news…
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Join Us for a Foundation Event Upcoming Events

Events

Events Search and Views Navigation

Event Views Navigation

Today

  • Stepping Out to Cure Scleroderma – Salt Lake City

    Liberty Park 1113 S 700 E, Salt Lake City, UT, United States

    Join us for Stepping Out to Cure Scleroderma - Salt Lake City on Saturday, June 13. Our walk also serves as a powerful gesture of support for individuals and families currently battling Scleroderma right here in our region. By participating, we show them they are not alone. We raise awareness, share resources, and offer encouragement. Every […]

  • Stepping Out to Cure Scleroderma – Crown Point, IN

    Lake County Indiana Fairgrounds 889 S. Court Street, Crown Point, IN, United States

    Join us for Stepping Out to Cure Scleroderma Crown Point! When: Saturday, June 13, 2026 Where: Lake County Indiana Fairgrounds, 889 S. Court Street, Crown Point, IN Registration: 9:00 a.m.    Walk Begins: 10:00 a.m. Click here to register.  Register by May 27, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show your support of our […]

  • Stepping Out to Cure Scleroderma – Deer Island Stroll

    Deer Island 190 Taft Ave., Winthrop, MA, United States

    For 10 years, the Deer Island Stroll has brought our community together with one shared goal; supporting those affected by scleroderma. We are honored and excited to celebrate this milestone together. Register by June 1, to guarantee your t-shirt. Click here to register: 2026 Stepping Out - Deer Island Stroll, MA Where: Deer Island, 190 […]

  • Stepping Out to Cure Scleroderma – Seattle, WA

    Seward Park 5900 Lake Washington Blvd S, Seattle, WA, United States

    Registration starts at 9:00 AM. The walk starts at 10:00 AM. Register by May 23, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you’re part of our mission! CLICK HERE TO REGISTER

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Join Us for a Foundation Event Upcoming Events
September 16, 2025, 7:00 p.m. ET Bereavement Support Group
September 16, 2025, 7:00 p.m. ET Morphea/Localized Scleroderma Support Group
September 17, 2025, 6:30 p.m. CT West Metro Support Group (MN)
September 18, 2025, 6:00 p.m. ET Central North Carolina SSc Support Group
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation