Recommended Resources
University of Michigan – Michigan Medicine Scleroderma Program
The Michigan Medicine Scleroderma Program is a multidisciplinary group of caregivers, scientists, and clinical researchers dedicated to advancing knowledge about scleroderma and related conditions.
University of Michigan – Michigan Medicine Scleroderma – Peer Mentor Program
University of Michigan-Michigan Medicine website for the Scleroderma Peer Mentor Program. Peer mentors are great because of the emotions you feel when initially diagnosed it may be helpful to someone else who has experienced the same diagnosis. The Michigan Medicine Scleroderma Peer Mentoring Program is only available to individuals receiving care at Michigan Medicine.
Yoga for Scleroderma
Keep those Scleroderma bodies moving, because yoga is for EVERY Scleroderma body – NO excuses!
ClinicalTrials.gov
You can search for recently completed and newly funded research studies on scleroderma that may be recruiting participants by going to clinicaltrials.gov and including systemic sclerosis/scleroderma or your specific condition.
The Scleroderma Toolkit was put together by a team at the University of Michigan’s Telehealth and Rehabilitation Advancing Chronic Condition Research (TRACC-R) Center. The Foundation is grateful to the University of Michigan for sharing this material with the scleroderma community. The Scleroderma Toolkit with funding from the Rheumatology Research Foundation (Lawren H. Daltroy Preceptorship in Health Communication).
Disclaimer: The National Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials or studies referenced in this toolkit. Information is provided to keep the community informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with your healthcare provider team for proper evaluation and treatment.
The Scleroderma Toolkit
Discover helpful tools that can help you navigate the scleroderma journey with confidence.