The National Scleroderma Foundation is very excited to introduce Daniel Martinez to the team. Daniel joined the Foundation in February 2026,...
Living with a rare disease like Diffuse Scleroderma can feel overwhelming, isolating, and extremely frightening- especially in the early days of...
The National Scleroderma Foundation is delighted to be participating in the Rare Disease Week and Rare Disease Day activities organized by...
The National Scleroderma Foundation is very excited to introduce Chrissy Geimann to the team. Chrissy joined the Foundation in early 2026,...
The EACH/PIC Coalition has released an updated, patient-led analysis that sheds light on how people across the U.S. actually experience prescription...
On January 24, 2026, our Florida and Puerto Rico Chapter successfully hosted Scleroderma Insights, its first in-person scleroderma educational event in...
We’re proud to share that we have joined the Champions for Change – Paid Time Off (PTO) Initiative, a national effort...
Peter Morawski, PhD, is a 2023 National Scleroderma Foundation research grant recipient, and is on a quest to find better treatments...
In the scleroderma community, support groups are more than just a gathering – they are lifelines. They offer connection, understanding, and shared strength....
