The National Scleroderma Foundation and our network for patient advocates are preparing for our next Virtual Hill Days meetings. Scleroderma advocates...
The National Scleroderma Foundation is excited to introduce Dionna Bartos as our new Director of Education. Dionna first joined the Foundation...
Q: Do you have any advice regarding how people can/should go about getting a proclamation from their local areas for Scleroderma...
The National Scleroderma Foundation is very excited to introduce Daniel Martinez to the team. Daniel joined the Foundation in February 2026,...
Living with a rare disease like Diffuse Scleroderma can feel overwhelming, isolating, and extremely frightening- especially in the early days of...
The National Scleroderma Foundation is delighted to be participating in the Rare Disease Week and Rare Disease Day activities organized by...
The National Scleroderma Foundation is very excited to introduce Chrissy Geimann to the team. Chrissy joined the Foundation in early 2026,...
The EACH/PIC Coalition has released an updated, patient-led analysis that sheds light on how people across the U.S. actually experience prescription...
On January 24, 2026, our Florida and Puerto Rico Chapter successfully hosted Scleroderma Insights, its first in-person scleroderma educational event in...
