“When one person gets sick, the entire family gets sick.” Rachel Meyn Ugarte is no stranger to the nonprofit world. As Chief...
Establishing a circle of support for men “Men in my generation aren’t supposed to cry.” –Michael Bessert Relentless. Unabating. Traumatic. These...
On October 1, 2022, the National Scleroderma Foundation announced their 2022 National and Chapter Volunteer Awards at their annual Leadership Day. ...
The Congressionally Directed Medical Research Programs’ (CDMRP), Peer Reviewed Medical Research Program (PRMRP) consumer advocate recently participated in the evaluation of...
Kevin Boyanowski Elected as Chair of the National Scleroderma Foundation DANVERS – The National Scleroderma Foundation has elected Kevin Boyanowski to...
The scleroderma community is mourning the loss of Dr. Giuseppina Alessandra Farina, who passed away last week while in Italy with...
On April 21, 2022, the Foundation held a virtual brand launch event. It was great opportunity to unveil a new look...
The National Scleroderma Foundation announced today that recording artist Ashley Barron has been named their official Celebrity Ambassador. A new star...
UPDATED April 11, 2022 By Jiha Lee, MD, MHS, and Dinesh Khanna, MD, MSc, Department of Internal Medicine, Division of Rheumatology,...
